Monday, January 12, 2009
First time post
Well this is my first post here. I'm 35 years old I have CF . I was 27 when I was diagnosed, up until then I was told I had Asthma . I was somewhat healthy until I was 32 ,,I moved into a dusty old house that was vacant for 20 years . I started to go down hill from there .I was 33 when I started on O2 . At first oxygen was only at night but that did not last before I knew it Bam 24/7 O2 . I got sicker and sicker . I started going to MGH at first but decided that it was not the place for me so I moved to Brigham and Womans hospital . I did most of my transplant workup at MGH and finished at B&W I was listed for tx 11/26/08 I guess I was pretty sick because I was called in 11/27/08 for transplant surgery . I had first cut at 5:30 ish and out and awake by 8:30 the next day. I was in ICU for 3 days and I left post op on day 10. I was doing great up until New Years eve I got a call from the hospital after my on month bronc they found B1 rejection (small) but I was admitted that Friday I spent three days on nasty high amounts of Prednisone . Now-- I feel good still alittle afected by steroids a little shakey a little achey but I thank God every day for my new lungs and the person who was unselfish enough to donate. This is what I like to call the man version, to the point,I tried to keep to the facts, its my life , the times may not be 100% but this is mostly how it happen .
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Glad to see you blogging, Shawn, you have a great story to tell and are a good resource. Thanks for sharing.
ReplyDeleteKim
Hi,
ReplyDeleteMy name is Sharon Ray and I am the assistant editor of Cysticfibrosis.net. I am contacting you today in hopes of developing a relationship with your website; we have seen your site and think your content is great. Cysticfibrosis.net offer a free informational resource to both the general and professional public on this terrible disease.
I hope you show some interest in building relationship, please contact me at sharon.cysticfibrosis.net@gmail.com.